Landon’s Legacy Foundation

The Foundation was established in 2023 in honor of Landon D’Aprile. The goal of the Foundation is to assist children with special needs and their families.

Landon is our guiding light, he made everyone happy. His smile was absolutely contagious. He would smile so big, and then fall in for an all-encompassing hug. Despite being non-verbal, Landon communicated his joy with those smiles, squeals, and laughs. He showed his positivity to everyone he worked with: parents, teachers, nurses and doctors, therapists and caregivers. He met every challenge head-on and was eager to show off the skills those who worked with him helped develop. Landon was a charming goofball!

Landon was born on May 9, 2017 and diagnosed with infantile spasms, a rare form of epilepsy, at four months old. Later diagnosed with Lennox-Gastaut Syndrome, epilepsy had a major impact on Landon’s development. Landon became a regular at Phoenix Children’s Hospital Landon underwent major brain surgery and had a vagus nerve stimulator (VNS) implanted to try to control his seizures.  

Landon tragically passed away on June 6, 2022.   He was an inspiration and warrior in the epilepsy community and made friends and admirers wherever he went.